Enhance Transition Care for Medically Complex Adolescents
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complex medical health adolescents, medically complex pediatrics, pediatric transition and adult care, transition competence, transition importance, transition care pediatric neurosurgery, transition assessment, transition preparation, transition spina bifida and hydrocephalus, mobile applications with hydrocephalus, technology apps in healthcare
Abstract
Medically complex adolescents with spina bifida and shunted hydrocephalus are living into adulthood and requiring healthcare as adults. For effective neurosurgical care to continue from a pediatric practice to an adult practice, a transition process is necessary and supported by evidence-based practice to minimize risks for discontinuing care, patient dissatisfaction, death, and increased hospitalizations and emergency room visits. Studies reveal effective transition care will lessen patient dissatisfaction and prevent death. Evidence reveals mobile applications improve patient satisfaction, knowledge of patient education, improve medication adherence, and improve disease management with follow-up visits. A quality, improvement project assessed transition importance and transition confidence with utilization of a Transition Readiness Assessment tool and the HydroAssist® Mobile Application for adolescents with spina bifida and shunted hydrocephalus. A one cohort project was conducted with seven adolescent participants at an outpatient pediatric clinical setting. Results revealed an increase in the transition importance and transition confidence scores. Development of a transition program for adolescents with complex medical conditions can improve the adolescent’s confidence and importance to successful transition process within adult practices.
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Open Access (fully available)