Long-term outcomes and parental decision-making about treatment for deformational plagiocephaly
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Abstract
Deformational plagiocephaly is a misshapen head in an infant that arises at birth, or shortly thereafter, due to an asymmetry of the skull. There are two treatment methods available for plagiocephaly: helmeting and repositioning. Little is known about the long term-outcomes of these two treatment options. The purpose of this study was to examine a group of children (n=100), who received helmeting or repositioning therapy as an infant, and compare the long-term outcomes of the two groups at two to 10 years posttreatment. Anthropometric skull measurements taken as infants when plagiocephaly treatment was received was compared with measurements taken for this study. Questionnaire data was collected from parents to examine parental satisfaction with their child's current head shape and to describe factors that influenced parents' treatment decision: helmeting vs. repositioning therapy. Andersen's behavioral model of health care services was used as a guiding framework for this study.
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Introduction -- Review of literature -- Methodology -- Results -- Discussion -- Appendix A. Deformational plagiocephaly (DP)/flat head questionnaire -- Appendix B. Explanation letter mailed to parents -- Appendix C. Script for phone calls -- Appendix D. Informed consent -- Appendix E. Assent form -- Appendix F. IRB authorization agreement between Washington University and UMKC
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Ph.D.