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    • 2014-2016: Journal of academic hospital medicine
    • Journal of academic hospital medicine, volume 7, issue 2 (2015 April-June)
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    •   MOspace Home
    • University of Missouri-Columbia
    • School of Medicine (MU)
    • Department of Medicine (MU)
    • Division of Hospital Medicine (MU)
    • 2014-2016: Journal of academic hospital medicine
    • Journal of academic hospital medicine, volume 7, issue 2 (2015 April-June)
    • View Item
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    Case analysis : Ethical issues in predictive genetic testing of minors for adult-onset hereditary conditions

    Wahidi, Lila
    Brandt, Lea
    Sherman, Jan
    Sherman, Michael
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    [PDF] JournalOfAcademicHospitalMedicineV7I2Wahidi.pdf (145.0Kb)
    Date
    2015-04
    Format
    Article
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    Abstract
    Introduction: Predictive genetic testing for adult-onset conditions in children is an issue that has initiated ethical discussions and polarized views. Case Presentation: A genetic counselor is contacted by a mother requesting predictive genetic testing of her young son for Hereditary Nonpolyposis Colorectal Cancer (HNPCC) due to an extensive family history of the condition. The ethics team subsequently worked to balance professional guidelines and ethical considerations to evaluate whether to comply with the parental request. It was necessary to consider the importance preserving the child's future right to exercise his autonomy in participating in such testing, preserving the confidentiality of the test result, and considering the possibility of potential psychological harm. Conclusion: Determining whether to perform predictive genetic testing in a minor for conditions of adult-onset should be guided by the potential outcomes that indicate that medical benefits obtained will outweigh the risks of testing.
    URI
    https://hdl.handle.net/10355/63941
    Part of
    Case Report
    Part of
    Journal of academic hospital medicine, volume 7, issue 2 (2015 April-June)
    Citation
    L Wahidi, L Brandt, J Sherman, M Sherman, Case Analysis: Ethical Issues in Predictive Genetic Testing of Minors for Adult-Onset Hereditary Conditions. Journal of Academic Hospital Medicine 2015, Volume 7, Issue 2
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    • Journal of academic hospital medicine, volume 7, issue 2 (2015 April-June)

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