Enhance Transition Care for Medically Complex Adolescents
Abstract
Medically complex adolescents with spina bifida and shunted hydrocephalus are living into
adulthood and requiring healthcare as adults. For effective neurosurgical care to continue from a
pediatric practice to an adult practice, a transition process is necessary and supported by
evidence-based practice to minimize risks for discontinuing care, patient dissatisfaction, death,
and increased hospitalizations and emergency room visits. Studies reveal effective transition care
will lessen patient dissatisfaction and prevent death. Evidence reveals mobile applications
improve patient satisfaction, knowledge of patient education, improve medication adherence, and
improve disease management with follow-up visits. A quality, improvement project assessed
transition importance and transition confidence with utilization of a Transition Readiness
Assessment tool and the HydroAssist® Mobile Application for adolescents with spina bifida and
shunted hydrocephalus. A one cohort project was conducted with seven adolescent participants
at an outpatient pediatric clinical setting. Results revealed an increase in the transition
importance and transition confidence scores. Development of a transition program for
adolescents with complex medical conditions can improve the adolescent’s confidence and
importance to successful transition process within adult practices.
Degree
D.N.P.
Thesis Department
Rights
Open Access (fully available)
Copyright retained by author
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