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dc.contributor.advisorChrisman, Matthew
dc.contributor.authorElliott, Melissa Deanna Hatch
dc.date.issued2022
dc.date.submitted2022 Fall
dc.descriptionTitle from PDF of title page, viewed January 4, 2023
dc.descriptionDissertation advisor: Andrew Chrisman
dc.descriptionVita
dc.descriptionIncludes bibliographical references (pages 65-81)
dc.descriptionDissertation (Ph.D.)--Department of Nursing and Health Studies. University of Missouri--Kansas City, 2022
dc.description.abstractOne percent of infants born have CHD making it the most common congenital anomaly. Of those infants born with CHD, 1% have a functionally single ventricle. This type of heart defect requires three palliative heart surgeries, the first within seven days of birth, the second at 4-6 months, and the third at 2-5 years of age. Parents endure emotional trauma from witnessing their child in life-sustaining care, experiencing reoccurring hospitalizations, and the evolving reality of having a child with a chronic illness. Parent trauma impacts typical experiences for the parent and the infant resulting in impaired coping, bonding, and confidence. The infant may have problems with feeding or neurodevelopment. Parents with unresolved trauma may be less engaged in medical care, which is a predictor of later infant outcomes. The purpose of this study is to describe the levels of parent post-traumatic stress before and after their infant’s second palliative surgery for SVCHD. A descriptive correlational, longitudinal design was used. The post-traumatic stress disorder checklist revised for the DSM-5 (PCL-5) was administered via Research Electronic Data Capture (REDCap) to 22 parents before and after the second palliative heart surgery. Descriptive statistics were used to evaluate and describe the demographic data and the level of post-traumatic stress at the two-time points. The Wilcoxon signed-rank test was used to determine the relationship between the two PCL-5 scores. There were positive PCL-5 scores present pre-surgery and post-surgery. Most of the scores (n=13, 59%) decreased between surgery one and two, although we did not have the statistical power to make definitive conclusions from the data. An inverse association between the PCL-5 scores and income and level of education was noted. The timing of the surveys introduced many factors beyond the control of the study team. Future research should seek scores at consistent time points not bound by surgery.
dc.description.tableofcontentsIntroduction -- Review of literature -- Methodology -- Results -- Discussion
dc.format.extentviii, 82 pages
dc.identifier.urihttps://hdl.handle.net/10355/93813
dc.subject.otherDissertation -- University of Missouri--Kansas City -- Nursing
dc.titleParent’s Post-traumatic Stress before and after their Infant’s Second Palliative Heart Surgery: The PatHS Descriptive Correlational Longitudinal Study
thesis.degree.disciplineNursing (UMKC)
thesis.degree.grantorUniversity of Missouri--Kansas City
thesis.degree.levelDoctoral
thesis.degree.namePh.D. (Doctor of Philosophy)


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