A survey of women with breast cancer related lymphedema : identifying the need for support
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"Based on survey results, a proposed practice change would implement an interactive intervention that includes physiological, psychological, and social parameters to facilitate patients' and healthcare providers' participation in meaningful dialogue. Several studies focus on patient education; however, few incorporate a supportive component. Education by itself is not sufficient to provide the support that patients need and may not lead to improved adherence to BCRL regimens or help-seeking behaviors. Survey results demonstrated 81 percent of the participants indicated that an interactive format worked best for providing education about lymphedema and 77 percent reported that an interactive format for providing support was preferred. Similar to patients who need help to develop questions to ask their physicians when diagnosed with life-threatening illness, patients also need help to understand and select the types of support that will best fit their needs. It is the responsibility of health care providers to initiate patient-centered research in developing innovative research-based alternatives in providing education and support from which patients can choose what works best for them."--Conclusions.
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